How was your experience with Lusine Aghajanova at Stanford University?
I went in for a consultation regarding fertility treatment because we wanted to try to freeze embryos, before I got too much older (I'm early 40s). She told me she would have preferred to see me when I was 35 or so. Which made me cry, because what am I supposed to do, turn back time? She did not seem empathetic at all that we were acknowledging my advanced maternal age, and were asking for her support. What made it worse is that I had tried to schedule a consultation with the clinic years earlier, and they did not return my calls.
We did conventional IVF for our first cycle, since there was no male factor. For our second cycle, we signed consents to do the same, since we were not given any information about why some of our eggs did not fertilize normally. However, part way through the cycle, we were told our treatment plan was supposed to be ICSI because some eggs fertilized with multiple sperm last time. We had to resign consents because we were not given information at the beginning of the cycle.
What's one piece of advice would you give a prospective patient of Lusine Aghajanova at Stanford University?
Ask for the results of your treatment, and what they mean. Ask what your treatment plan is, and why. Do not expect her to provide this information without direct questioning.
During treatment, were you treated like a number or a human with Lusine Aghajanova at Stanford University?
She did not seem to know information from my chart each time I went in for an appointment.
Describe the protocols Lusine Aghajanova used in your cycles at Stanford University and their degree of success.
Cycle 1 Priming + Antagonist protocol: Estradiol priming (9 days), Gonal F 300 + Menopur 150 stimulation (12 days) and Ganirelix (last 5 days), HCG + Gonal F 400 trigger.
Presumably chosen to be gentler, and due to advanced maternal age.
Baseline follicle count was supposedly 14, but did not all develop at the same rate. 5 eggs retrieved, conventional IVF, 3 fertilized normally + 2 fertilized with multiple sperm, 3 blastocysts at day 7 with grades 4AA 6BB 6CB.
Cycle 2 Priming + Flare Protocol: Estradiol priming (10 days), Microdose Lupron 10 (16 days) and Gonal F 300 + Menopur 150 (13.5 days), HCG + Gonal F 400 trigger.
Presumably chosen for above, and to try to get more eggs mature.
7 eggs retrieved, ICSI all 7 mature, 6 fertilized, 3 blastocysts at day 6 with grades 4BC 4CC 6CC.
Cycle 3 Antagonist Protocol: not yet started, but presumably birth control pills, Gonal F 225 + Menopur 150 + Ganirelix, HCG + Lupron trigger.
Presumably chosen to get follicles to develop at the same time.
Describe your experience with your nurse at Stanford University.
Although the doctor has a specific nurse and care coordinator as part of my care team, I did not actually find I interacted with those people primarily. And didn't even interact with my doctor primarily.
My communications with the care team were mainly via the online messaging system, and I found it extremely frustrating to actually get answers to my questions on scheduling cycles, what my protocol would be, getting my prescriptions called in, and when I needed to start medications. And the questions I had regarding my treatment that were meant for the doctor apparently did not get conveyed, or at least didn't get answered.
Describe your experience with Stanford University.
Scheduling appointments was around their schedule, and they often did not have times that worked well for me.
Although you are assigned a primary attending physician, you will be seen by anyone. Which sounds good, so you don't have to schedule around one person. But seems like it really means your treatment plan is not understood by the people you are seeing. Or maybe it is that my particular doctor didn't do a good job of documenting my treatment plan in my chart, so other doctors couldn't answer the questions I had.
What specific things went wrong at Stanford University?
- Failed to call in prescriptions to pharmacy
- Failed to call with results
- Failed to inform you of changes in protocol
- Provided conflicting information
Describe the specific things that went wrong at Stanford University.
I was given a schedule for when to expect results. I asked if the holidays would impact those dates. I was told no. I called a week after they said they would be available, because I hadn't gotten them yet. They didn't have them, but finally got them later that day.
We weren't told our treatment plan changed to ICSI or why. When we finally got this information, I was not told my partner had to come in to fill out paperwork again.
My trigger medication was not included in my initial prescription, so I had to arrange a separate delivery. They didn't do a good job estimating how many refills I would need when my cycle was running long, so I had to schedule multiple next day deliveries.