How was your experience with Robert Kiltz at CNY Fertility Center?
Positives: Dr. Kiltz is very passionate. He is honest about the structure of the clinic (more patients enable lower costs) and pricing. He seems very knowledgeable about treatments. I do have faith he will be able to get me pregnant. He gives out his phone number and email address and will respond to you. He is also very progressive and open to trying new medications/treatments. I am doing platelet rich plasma (PRP) uterine washes this cycle. Based on the research I've read, this sounds very promising. Negatives: Dr. Kiltz has very strong beliefs about infertility being related to diet, which I do not agree with. After a failed cycle he spent the entire telephone consult (which took 2 1/2 weeks to schedule) telling me that my tube is blocked because I eat lean meats, fresh vegetables, and fruits. He believes in the Keto diet (high fat, moderate protein, low carb). He flat out told me he was an expert with tons of experience and that my tube was blocked directly as a result of inflammation in my body, due to my diet. He then prescribed a ton of additional anti-inflammatory medications. I have chosen not to take most of the extras (prednisone, prograf [used to suppress the immune system in transplant patients], intralipids, and hydroxychloroquine [used to treat Lupus and autoimmune diseases]. I had an ANA test (for autoimmune disease) after my failed cycle and it was negative. I did a lot of research on my own to decide which medications I wanted to use (aside from the standard meds like estrace, progesterone, etc). Thankfully I am a nurse and feel comfortable researching these things myself. It would still be nice to be able to have a partnership with my doctor and not feel like it is all on my shoulders, as I am certainly not a fertility expert.
What's one piece of advice would you give a prospective patient of Robert Kiltz at CNY Fertility Center?
Be your own advocate, do your own research, and do what you are comfortable with. Realize you will not get a lot of time with any doctor at CNYF, but you can reach out to them by email and you should if it is something time sensitive that is important to you. Otherwise you will be waiting a looooong time for a phone consult.
During treatment, were you treated like a number or a human with Robert Kiltz at CNY Fertility Center?
Dr. Kiltz is very personable. During the time he was with me, he had a good bedside manner and attentive. While this is true, CNY Fertility is an extremely busy clinic and I only saw Dr. Kiltz on day of procedure.
Describe the protocols Robert Kiltz used in your cycles at CNY Fertility Center and their degree of success.
An "auto-immune" protocol was prescribed: prednisone, prograf, hydroxychloroquine, intralipids, low dose naltrexone, baby aspirin, lovenox. Most of these are immunosuppressants. The aspirin and lovenox thin the blood, which is supposed to increase blood flow to the placenta and prevent clots for those with clotting disorders. Low dose naltrexone is actually a very interesting drug used to treat autoimmune diseases as well as clinically low endorphins. It has very few side effects. It also boosts your immune system, which has helped me avoid getting sick. It also helps me sleep better. The only extra I took my first cycle was the baby aspirin. That cycle failed. I transfer again in five days. This cycle I have been taking LDN, baby aspirin, and start lovenox tonight. I did not find sufficient evidence that lovenox will increase my odds, but it has relatively few side effects, so I am trying it. I also took estrace vaginally, progesterone in oil and endometrium vaginal suppositories, and Cleocin (clindamycin - a vaginal suppository antibiotic) both cycles. Also, azithromycin orally at the very beginning of each cycle.
Describe your experience with the nursing staff.
The nursing staff is generally nice. However, they are very busy. They do not go above and beyond by any means. There was medication education along the way. But I did not have a good idea of the process. My first cycle I was never sure what was coming next. One thing that upset me was embryo testing was mentioned briefly at my consultation (July), then never brought up again. On my day of transfer (end of October), I mentioned I was considering PGS testing. I was told I needed to decide this before the day of.... yet it was never brought up at ANY of my monitoring appointments along the way leading up to egg retrieval. I am a nurse and feel it would have been appropriate to mention at the baseline monitoring appointment. This whole process is so overwhelming and it is difficult to keep up with everything. However, I always felt it was my responsibility to ask questions and stay on top of it all myself. And when I did ask questions, I would get an answer, but I felt like I was being a pain. I would also get different answers from different nurses, so I never felt like I could trust the information I was given.
Describe your experience with CNY Fertility Center.
In general, this is a nice, warm, inviting clinic. There are great resources on the website. Dr. Kiltz goes above and beyond for patients. He has a live chat on Facebook weekly. He believes in healing adjunctive therapies such as acupuncture and massage and it is very easy to schedule these extras the day of transfer. The clinic is very busy, so just beware. You get what you pay for. The prices are cheaper, so you rarely see a doctor. It's not a perfect place, but I assume other clinics have similar drawbacks. Although I would hope pricier clinics offer more time with the doctor and more patient centered treatment plans with patient input. Also, Mondays and Fridays are crazy busy at CNYF. It is best to avoid appointments on these days as much as possible. I always make early morning appointments so I am not late to work. It is nice that they have appointments as early at 06:15 am. I've found that if I come in any later than 06:30, I end up waiting awhile to be seen (at least 30 minutes past my appointment time). It gets worse as the day progresses. And even the early am appointments run late on Monday's and Friday's.
Describe the costs associated with your care under Robert Kiltz at CNY Fertility Center.
Most costs are posted on the website. $3900 for IVF cycle. $850 for monitoring. $250 for FET. All meds are separate. HCG wash $50. PRP $500 for once/$900 for two times in the same cycle. This was without insurance coverage. There were no hidden fees.
Describe Robert Kiltz's approach to eSET (elective single embryo transfer) vs. multiple embryo transfer at CNY Fertility Center.
My clinic wanted me to transfer one 5 day embryo based on my age and recommendations/guidelines from professional organizations. I am 36. I had my heart set on transferring two and actually want to have twins. The risks were explained to me and I have been allowed to transfer two both cycles.
What specific things went wrong at CNY Fertility Center?
- Failed to call in prescriptions to pharmacy
- Provided conflicting information
Describe the specific things that went wrong at CNY Fertility Center.
First, when I had medications called in as a new patient, I asked multiple times which medications I needed to order right away. There were a ton and I was planning on doing a freeze all cycle. I was told to order them all. I ended up ordering all of them and not using several (I researched the meds more myself and did not want to take immunosuppressants since I don't have an autoimmune disorders). I was very disappointed no one took the time to go over the meds with me. If they had, I wouldn't have wasted my money on meds I will never use. As I mentioned previously, the nurses tend to give conflicting information when I ask different staff the same question. I now just email Dr. Kiltz when I need specific information because I don't trust what I'm told by the nurses. There was one occasion when a med was not called in for me. I just called and requested it again and it was taken care of. I was scheduled for my upcoming transfer without being asked if any days would not work, then the nurse had to change the day. When I checked my portal later, I was scheduled for transfer both days. If I had not checked, they could have potentially thawed my embryos a day early.