I have only spoken to Dr. Kiltz once on the phone...The call was early in the morning (7 or 7:15) and he was exactly on time, which was impressive...He was friendly and knowledgable. He was compassionate, but didn't really ask me too much about my history or seem to have reviewed my file...Expect to hear about keto, the bebbi diet, Kiltz's keto, and that plants are out to kill us...I'd also say that he seems to be super dedicated to his work and is very passionate.
Sometimes I felt kind of lost [at CNY Fertility Center], like I was getting different information from each person I spoke with, like no one had reviewed my file before seeing me...I've only seen a doctor three times, and I really don't know who my doctor is...Everyone at the clinic is very kind. Some are friendlier and more personable than others, but all were very nice, and all seemed knowledgeable... They make a lot of people's dreams reality, so that's a strength.
How was your experience with Robert Kiltz at CNY Fertility Center?
I have only spoken to Dr. Kiltz once on the phone. I had a follow up call with him after several failed IUIs and before going to IVF. The call was early in the morning (7 or 7:15) and he was exactly on time, which was impressive. The call was good, and he agreed that IVF was a good next step. He was friendly and knowledgable. He was compassionate, but didn't really ask me too much about my history or seem to have reviewed my file. He spent a good portion of the call talking about the keto diet and that plants are killers. You can tell that he really cares about his patients and is passionate about what he does. I feel like there are some people who are lucky to see him often and get to know him, and then there are others who only interact with him once, if at all.
What's one piece of advice would you give a prospective patient of Robert Kiltz at CNY Fertility Center?
Expect to hear about keto, the bebbi diet, Kiltz's keto, and that plants are out to kill us. I'd also say that he seems to be super dedicated to his work and is very passionate. He regularly gives out his cell phone number, he does weekly fb/instagram live videos (daily during COVID19 pandemic), he starts his calls early in the morning. He must always be working! I wonder when he sleeps!
During treatment, were you treated like a number or a human with Robert Kiltz at CNY Fertility Center?
I selected that my care has been under two doctors, but I've only seen a doctor three times, and I really don't know who my doctor is. I had my initial consult with a PA who I have spoken to once since, I had a follow up call before going to IVP with Dr. Kiltz and he signs most of my prescriptions, and my HSG and egg retrieval were with Dr. Corley. Every other phone call and appointment was with a nurse...practically a different nurse each time. Sometimes I felt kind of lost, like I was getting different information from each person I spoke with, like no one had reviewed my file before seeing me. I really had to do a lot of my own homework and followup. I feel like my first egg retrieval was a real learning experience, so I'm eager to go into the second retrieval now that I know what to expect and what to do.
Describe the protocols Robert Kiltz used in your cycles at CNY Fertility Center and their degree of success.
I first planned to do three IUIs then move to IVF. My IUI cycles included a z-pak, prednisone, letrozol, ovidrel, and endometrin. I did not have any adverse reactions to the medication. I think I produced 1-3 follicles. The third IUI changed to a timed intercourse cycle, as my bloodwork indicated that I had either just ovulated or was about to. They said I could have still done the IUI, but there was an increased chance that the timing would be off.
For IVF, I started with a z-pak and prednisone, and stimmed with compound HCG and Follistim. I then used cetrotide and triggered with leuprolide acetate. I was supposed to trigger with HCG as well, but there was an error with the script and I never got it. I didn't realize I was supposed to have it. Apparently it wasn't signed and CVS Specialty sent it back to the clinic for signature, but never got it. Only four eggs were retrieved, 2 matured, and 1 fertilized and made it to blast. Genetic testing indicated it was abnormal.
I'm waiting for my second retrieval and the meds I have this time are follistim and menopur to stim, then cetrotide, followed by HCG and leuprolide acetate to trigger. During a follow up call with a nurse, she said that I responded as though I have a low ovarian reserve, even though my blood work does not indicate that. This was the protocol that she designed...I believe she called it the 450/150 protocol.
Describe your experience with the nursing staff at CNY Fertility Center.
Everyone at the clinic is very kind. Some are friendlier and more personable than others, but all were very nice, and all seemed knowledgeable. I have seen a lot of nurses at the clinic and have spoken to many different nurses on the phone.
Describe your experience with CNY Fertility Center.
CNY Fertility sees a lot of people, and is willing to try unconventional things to help people become parents. There can be a significant wait time to get your consultation, but once you're in, it's pretty quick to schedule all appointments and procedures to get moving. They make a lot of people's dreams reality, so that's a strength. I like that they have and encourage yoga, meditation, and acupuncture. Unfortunately many people feel like just a number there...probably a bi-product of seeing so many people. I'm considered a travel patient, even though I only live an hour away. I don't really know who my assigned doctor is, and I speak to/see someone different almost every time I'm there, call, or message through the portal. I imagine that local, non-travel patients may have a different experience.
It's VERY important to stay on top of everything, so that no balls are dropped. Do your research, follow up, ask questions. There was an error filling one of my scripts for my egg retrieval and I didn't know that I was missing one of my triggers. There were so many back and forths with the clinic and my pharmacy that I didn't realize that something was missing. Then, leading up to my retrieval every appointment started with "so, we're doing an IUI?", to which I responded "no, IVF." Not sure how that wasn't in my file and why no one knew that. Made me extra nervous.
They're really the only clinic around, and I can't afford to travel elsewhere. They seem to get results and overall I've had a very pleasant experience there. Everyone is very nice, the clinic is clean, modern, and they take care of you well and make sure you're comfortable. I'd recommend it as long as you know to stay on top of things and advocate for yourself. Eager to start my next round and still hoping for my rainbow baby.
Describe the costs associated with your care under Robert Kiltz at CNY Fertility Center.
I'm still waiting for some billing to come through. My insurance covered my IUIs, so I only had to pay two copays at each visit, one for the appointment and one for bloodwork. My medications for my three IUIs cost several hundred dollars.
Since I live in NY and work for a company with more than 100 staff, my IVF cycles are now partially covered. Unfortunately they do not cover the techniques used to fertilize the eggs (assisted hatching and something else that escapes me at the moment) and I believe that will cost $1000. It was $700 for the embryologist to sample the blastocyst, and I believe another $700 for the genetic testing (would be higher if I had more than one embryo). I have not gotten a bill from CNY for the fertilization and the embryologist. My medications have probably cost around $1,000.
I need to follow up with the financial team to make sure that my next retrieval is covered. Dr. Kiltz mentioned last night in his fb live video that some insurances are tricky with what they mean by three rounds. If it is not covered, then I will have to go to out of pocket pay with a financed payment plan, and I believe that is around $5,000.
I know that I am fortunate to have insurance cover a lot of this, but it is still more than what my husband and I can really afford to pay at this time.
Describe Robert Kiltz's approach to eSET (elective single embryo transfer) vs. multiple embryo transfer at CNY Fertility Center.
I have not gotten to transfer yet. I have one frozen day 5/6 embryo that came back as abnormal after genetic testing. Eager to have my second retrieval and will hopefully get more embryos and move to transfer.
What specific things went wrong at CNY Fertility Center?
- Failed to call in prescriptions to pharmacy
- Provided conflicting information
Describe the specific things that went wrong at CNY Fertility Center.
One of my prescriptions for one of my triggers for my egg retrieval was called in, but apparently was not signed. I didn't realize I was missing medication until my last appointment before the retrieval when the nurse came in to give me my instructions. CVS Specialty said they received an unsigned script and sent it back with a request for signature but never got it. I was never notified. Thankfully they adjusted on the fly and I was able to trigger with just the leuprolide acetate. Not sure if that had anything to do with only getting four eggs or not.
After my retrieval I had a call with an NP out of their Buffalo office to discuss next steps. It was a wonderful call and I felt confident moving forward. Plan was to prime for 60 days with omnitrope, then go into another retrieval. The NP told me to message her the month before my next retrieval month to schedule an ultrasound and bloodwork on day 20/21. She said that she might want to have me start some additional meds to prep. This was last month, as COVID19 was shutting down clinics. I read on the clinic's page and heard in Dr. Kiltz's live videos that they were not starting new cycles. So I messaged the NP and asked her what to do about the CD 20/21 u/s and bloodwork...asked if COVID was impacting the clinic. She said they were not stopping and to call to schedule my appointment. I called Syracuse the next day. The nurse I spoke to was shocked and didn't know why I was given that information. They were not scheduling those appointments or starting new cycles, like I had read on their site. She said that it's okay to keep priming for another 30 days. I felt deflated and disappointed to have to press pause on this journey. It lowered my confidence in the NP and made me feel like I don't know where to turn to get accurate information that is specific to my case.